“It’s not whether you get knocked down; it’s whether you get back up.” – Vince Lombardi

by Brandon Rabhar

Blake Leeper, an eight-time Paralympic Track and Field international medalist, world record holder and three-time American record holder, knows all too well the hurt that accompanies falling down. Physically, he has fallen down time and again due to being born with no legs. In the eyes of the Paralympics community, he has fallen from grace due to self-admitted bad personal life decisions.
But every time Blake Leeper has fallen, he has got back up stronger than ever before. And each time, he has risen with a newfound purpose in his life.
Born in the Smoky Mountains of Tennessee, Blake has defied the odds since the moment his parents Billy and Edith welcomed their baby boy in 1989.
“Being born missing one leg is a one in 40,000 chance,” said the jovial Leeper. “But being born without two legs? Those are astronomical numbers.”
Doctors told Leeper’s parents that the best case scenario for their legless son would be living life in a wheelchair. Fortunately for Leeper, his mother knew better. Edith worked as a nurse and was heavily involved in the medical community.
“This is not going to be his story,” Edith told those doctors and her husband nearly 30 years ago. Truly prophetic, Edith knew the key to changing the course of her son’s life was prosthetics.
Fast forward four years, and young Blake had major surgery so that his first legs would fit his little body better. For eight long weeks, Blake was in a full body cast and a wheelchair.
“I remember every single day being in that wheelchair and wanting to go outside. I knew in my head this was the last time I wanted to be in a wheelchair and it was,” recalls Leeper. “From that point on, I’ve been living life to the fullest.”
A purpose was born.
Blake, armed with legs for the first time, literally hit the ground running. He played any and every sport. He roller-bladed with his older brother Kris. So many times in those physically formative years, Blake’s legs would break or fall off, but he would always get back up. His main objective was to show the world how much he could do with his new legs.
In high school, Blake’s best friend just happened to be the best athlete on campus. His name was Coty Sensabaugh, who is currently starring at cornerback for the Pittsburgh Steelers.
“Coty pushed me in a lot of areas where other people were afraid to push me,” said Leeper. “When you’re dealing with people with a disability, others are afraid to push us. But the only way we can get better is to be challenged.”
After high school, Blake enrolled at the University of Tennessee as a pre-med student. He was ready to hang up the sneakers and become an orthopedic surgeon. That all changed the moment he saw Oscar Pistorius sprint across his television during the 2008 Olympics.
“It was the first time I saw an amputee on TV in a major sport,” said Leeper. “I remember thinking, ‘This is what I want to do! I have to get those blades!’”
A purpose was redefined.
Blake got his first pair of running legs the next year. Before he even had time to start seriously training, he and his parents drove 14 hours to Oklahoma to participate in the Endeavor Games and his first ever race. As a rookie competing in a field stacked with national champs, the odds were stacked against him. The doe-eyed novice took first place in all three events he raced in: the 100, 200, and 400 meters.
Two whirlwind weeks later, Blake found himself racing in an international event in Brazil. He ran even faster than he did in Oklahoma, won a silver medal and came close to conquering the world champion.
In 2012, Blake tied Pistorius’s record time in the 400 meters going into the London Paralympics. He was ranked #1 in the 100, #1 in the 200, and #2 in the 400. In London, Blake won the silver medal in the 400 behind previous inspiration Pistorius and took home the bronze in the 200.
Only a few years after getting his running blades, Blake became a celebrated media mainstay. He played alongside superstars Kevin Hart and Chadwick Boseman in the NBA All Star Celebrity Game. His positive personality was welcomed on The Queen Latifah show, the Arsenio Hall show, and the Naomi Campbell fashion show. For the first time in his life, Blake was making big money.
“My life changed and I wasn’t prepared for it. I left college to quit partying, and I changed my environment but I didn’t change the person inside of me,” said Leeper. “I started hanging with the wrong people. Track, TV, interviews, flying everywhere for events. The only way I knew to balance that was to drink.”
Relying on talent, Blake was able to pull off the delicate balancing act of partying and still competing and winning. He broke every American record. He seemed invincible on and off the track.
In 2015, Blake did cocaine and a week later raced in the US Paralympic Nationals, breaking the American record. But he failed the drug test. The punishment was a one year suspension, reduced from two years behind the promise that Blake would get clean. The story broke in the Los Angeles Times.
“I lost my career, I lost my sponsorships, and I lost my legs,” said Leeper. “I hit rock bottom.”
A purpose was knocked down. But it would get back up.
Determined to come back stronger and faster after serving his suspension, Blake needed to find a new pair of running legs. Aaron Holmes from Wiggle Your Toes connected Blake with Scott Sabolich Prosthetics.
Blake walked into the building, back in Oklahoma where his racing career had begun, for the first time wearing two different pairs of legs that he had duct taped together.
“I had to go into my closet of legs I had collected over the years and put them together myself. I walked out with three pairs of legs,” said Leeper. “Scott Sabolich Prosthetics, they’re the best in the world. Their facilities, their lab, their staff. And for them to want to take a chance on me was truly amazing.”
Refocused, Blake was ready to prove that he was the fastest amputee in the world. Along with the new legs, he obtained new coaches, management, a trainer, and a nutritionist in preparation for the 2016 Paralympics in Rio de Janeiro. Running was no longer a hobby or a job, it was his life.
One year after testing positive for cocaine, Blake dropped his 400 meters time from 48 seconds, an American record at the time, to 46.1 seconds. He made the 2016 Paralympics team.
“My parents and my girlfriend Sadie are in Rio. We got a dog and named it Rio. Two weeks before the Paralympics, I got a call. The USA approved my deal, but the international committee did not,” Leeper said. “I was devastated, but I knew it was a self-inflicted wound. I took responsibility.”
After that life altering phone call, Blake went to his room, took off his legs and didn’t leave for three days. His coaches had to bust down Blake’s door to get him out. He walked out of that door a new man.
A fun and easygoing soul, Blake was mad and trained with a chip on his shoulder. The 46.1 he ran qualified him for the 2017 able body national championships, making history as the first amputee to qualify for any national championships.
At trials, Blake ran a blazing 45.5, qualifying for the semifinals. The man with no legs beat 2016 Olympians. The next day, Blake ran a 45.25 and broke Pistorius’s amputee world record, a personal goal of his from day one. He finished 12th overall out of top 64 fastest runners in the nation.
A purpose fulfilled.
To make the 2020 Olympic relay team, Blake needs to cut his time down about half a second and place top 6 overall. That’s his primary focus on the track these days. But it’s getting his life off the track back on the right track that defines the man.
“I love to talk about my failures because those were the most important days of my life. Being suspended actually saved my life,” Leeper said. “That’s my message. It’s one thing being born without legs. I didn’t have a choice. But as an adult, I had to lie in the bed I made. My mamma always said that.”
Edith Leeper was right. Being in a wheelchair would not be her son’s story. His story is one of triumph, tragedy, redemption and most importantly, purpose. And it’s a story that he fully embraces and loves.
“I’m living life to the fullest right now, trying to be present in the moment,” said Leeper. “But down the road, I’m gonna be like holy smokes, I played basketball with Black Panther!”

As a baby boomer, enough of the 1960s rubbed off on me to make me willing to question everything. I still believe there are absolutes, however, no matter how polically incorrect that may be,
The cataclysm of the Sixties started long before. You could say it began with early man. A survey of what our great philosophers had to say about humanity points to a downward spiral:
During the Iron Age, Israel’s King David asked, “What is man, that [God] is mindful of him?” (Psalm 8:4, NIV), but in Ancient Greece, Plato defined man as “a being in search of meaning.” He didn’t turn to God exclusively or even primarily in the search for his identity.
During the Renaissance, Descartes described humanity’s increasing dependance on their own reasoning. “I think; therefore I am.” No wonder in the last century that Friedrich Nietzsche said, “God is dead. God remains dead. And we have killed him.”
In the wake of the sweeping changes that changed how our nation thought, God raised up warriors to “demolish arguments and every pretension that sets itself up against the knowledge of God.” (2 Corinthians 10:5 NIV) As Francis Schaeffer said, “He Is There, and He Is Not Silent.” I read his books, as well as others by C.S. Lewis, Philip Yancey, and Josh McDowell. What I learned only magnified my commitment to what I already believed by faith.
A generation later. my son struggled at a much deeper level. He wanted to believe in God, but he didn’t know that he could. He read the Bible from Genesis to Revelation, and sought answers to his questions. Now he is an apologist himself, eager to share not only what he believes but why.
I’m proud and grateful for my son’s calling. But it’s not mine. My intellect agrees God is sovereign, but my old way of life tugs me in the wrong directions. The apostle John describes my struggle well: in addition pride in my achievements and possessions, I’m also drawn to a craving for physical pleasure as well as for everything I see(I John 2:16 NLT).
Some of those distractions are outside of my control. In the nursing home where I live, we have several residents with dementia. People suffering from the disease may grow belligerent and offensive
Not everyone is surrounded by dementia patients, but most of us hear offensive language fairly often—at work, at school, sometimes at home and on the media. The best way I know to combat such repulsive thingsis to fill my mind with good thoughts, whatever is true, honorable, right, pure, lovely, admirable, excellent, and praiseworthy (Philippians 4:8, NLT).
No, I don’t have complete control, not even in my room, since I share it. But where I can make a choice, I seek to proactively fill my mind with good things.
I’ve memorized hundreds of Bible verses. I continue to dive into scripture and to write devotions and poetry based on my studies, stockpiling memories for future reference. As hymnist Kate Wilkinson wrote, “May the Word of God dwell richly in my heart from hour to hour.”
I also train myself to have the mind of Christ, to look out for the interests of others before my own (Philippians 2:3-5). When I do, my spirit grows calmer, and I am able to communicate with someone who otherwise annoys me.
If I review the day’s problems at night, wakefulness plagues me. I sleep better when I review memory verses, pray, or sing hymns. Occasionally I create a poem. It doesn’t matter if I remember the lines when I wake up. The process helped me rest.
I also find it helpful to speak frequently of God’s wonderful deeds on my behalf. The more I do, the more His blessings come to mind. Encouragement, not complaints, should come from my mouth.
Bottom line? When I set my mind on things of the spirit, I will prove that God is true, even when every man seems to be a liar. He corrects my hearing and my vision.

Battle of the Mind
Jesus, hosanna, save now
My thoughts may wander
Let me in Your mind abide
You make me stronger.
May I never brood on strife
Rehearsing details
Better to hold Your word tight

Photography and Text by Terry “Travels with Terry” Zinn t4z@aol.com

The abundance of theatrical talent in Oklahoma is no secret as it has been exhibited for decades by a number of theaters and venues. The upcoming Concert Version of an all time favorite of Meredith Wilson’s The Music Man In Concert, hosts a number of professional and amateur performers familiar to Oklahoma audiences.
What makes this production, co-produced with Oklahoma City Community College’s Performing Arts Series, September 28 – 30, special, is it’s a community wide celebration, where non equity actors and actors associated with other theater groups, as well as long time Oklahoma performers are brought together with young people from across the community. It’s not only a celebration of the 60th anniversary of this Broadway classic, but a celebration of Oklahoma talent, many of them are senior citizens.
As an active senior citizen, I am particularly pleased to have passed the double open audition process and will be supporting the cast in the ensemble. In a way this is a “Circle of Life” experience as I first began my theatrical roles in the ensemble of Lyric Theater of Oklahoma in 1972. As so many of this cast can, I’m paying tribute to the solid theatrical foundation given by my Oklahoma City University professors, including; Grant Kilpatrick, Mariana Davenport and Florence Birdwell.
This production features Jonathan Beck Reed and Teri Bibb as the unconventional romantic couple of Professor Harold Hill and Librarian Marian Paroo.
Reed, one of Oklahoma’s favorite actors, reprises the role he has played many times, including the 30th Anniversary revival tour all across north America. Having performed the role 504 times, Reed says with tongue in cheek, “I love this show and I love this role, and this time, God willing with the distinguished Harry B.Parker’s guidance, I’m hoping to finally get it right.”
This concert version will be directed by Harry Parker, who is returning to his native Oklahoma City for the occasion, with Musical direction by Dr. Sandra Thompson and choreography by Hui Cha Poos.
Bibb, an Oklahoma native and OCU graduate returns to Oklahoma City and the CityRep stage. Bibb is a highly regarded Broadway veteran, having logged more than 1000 performances of the role of Christine in Andrew Lloyd Webber’s Phantom of the Opera, as well as performing Amalia in She Loves Me on the great white way. Bibb has also given a command performance at The White House and earned a Helen Hayes Award nomination and a Carbonell Award for her performances.
CityRep describes the show as, “..following traveling salesman Harold Hill as he cons the people of River City, Iowa, into buying instruments and uniforms for a boys’ band that he vows to organize — despite the fact he doesn’t know a trombone from a treble clef. His plans to skip town with the cash are foiled when he falls for Marian, the town librarian, who transforms him into a respectable citizen by curtain’s fall.”
This show marks the start of CityRep’s 17th season as Oklahoma’s award-winning professional theatre. Don Jordan, Founding Artistic Director explains that, “THE MUSIC MAN IN CONCERT is part of a new trend in leading American regional theatres. The concept is known as PublicWorks. Introduced by the Public Theatre in NYC in the past 5 years, leading theatres across the country, including the Dallas Theater Center, have begun to expand the concept.”
Jordan says “The idea is to encourage community-wide involvement in the art form. We have reached out across our community to have extraordinary participation from a wide variety of fellow organizations including Oklahoma City Community College, University of Central Oklahoma, The Ambassadors Show Choir, RACE Dance company, OETA, Painted Sky Opera, The 405 Barbershop Quartet, OU, OCU and others. We anticipate the final company will be more than 100 strong, from across a wide swath of our community! This project embodies the Oklahoma “Good Neighbor” spirit.”
Jordan goes on to say that, “THE MUSIC MAN has been one of America’s most-beloved musicals for 60 years, and this unique concert version allows us to all celebrate our love for this classic and to embrace its message of community and of the power of the arts to enrich every life! CityRep’s mission is to serve Oklahoma’s diverse artistic, educational and civic needs by providing dynamic professional theatre. We entertain, enlighten and Inspire! Our vision is to be a vibrant regional theater that is vital to the cultural, educational and economic life of Oklahoma.”
It would be a shame not be charmed once again by the fast talking salesman in this family-friendly, 6 time Tony Award winning musical comedy.
The Music Man In Concert will be performed at the, Visual and Performing Arts Center Theater at Oklahoma City Community College, Friday September 28 and 29th at 7:30pm and Sunday September 30 at 1:30pm
For more information and tickets call: Box Office: 405-848-3761 Direct Cell: 405-505-7828

by Bobby Anderson, Staff Writer

It’s early afternoon in the hot, Oklahoma sunshine and Christa Boren, LPN, pulls back on the slingshot straps and lets a water balloon fly.
The wooden SpongeBob target 20-feet away survives a dousing as the balloon splashes to the ground.
Boren laughs.
It’s good to be home.
“It’s amazing,” she says. “I really miss the center so when they gave me this opportunity I had to jump on it.”
Boren worked at J.D. McCarty Center in Norman for a number of a years as a nurse and nurse manager. When family business moved her away she thought she’d never get to work at the center for children with developmental disabilities again.
She was wrong.
Boren has worked as the evening and night shift nurse at Camp ClapHans for three years now.
Horseback riding, movie nights, talent shows and dance parties are just some of the events offered at camp ClapHans. Several members of the University of Oklahoma football team visited this summer as well as some church groups.
“That allows our kids to interact with other kids who are age-appropriate,” Boren said. “Our kids get to really play with those kids and they’re not being judged. It also allows those kids from these groups to come out and interact with our kids and learn. Maybe next time they’re out and they see a wheelchair they’re not going to stare … because they are just kids.”
Camp ClapHans is a residential summer camp for kids with special needs ages eight to 18.
The camp is located on the south end of the McCarty Center’s 80-acre campus in Norman.
It features two cabins, a multi-purpose building and is built next to an 11-acre lake. The camp features summer camp activities like archery, canoeing, fishing, horseback riding, camp fires, swimming, indoor and outdoor games, arts and crafts and much more.
J.D. McCarty provides a one-to-one camper-to-staff ratio with a nurse on site 24-hours a day.
That’s where Boren comes in.
“It was a little overwhelming but really the worst thing about camp is the heat,” she said. “The kids are amazing. We have a group of counselors every summer who are college students … and they come out and they do this for free five weeks out of the summer and are an amazing group of kids.”
When her husband opened a physical therapy clinic in Elk City Boren quit her job at J.D. McCarty and moved with her family.
Boren became a nurse at 20 and had worked in the hospital setting before settling into her role with J.D. McCarty.
“It’s absolutely amazing. I loved the fast-paced stuff but at times it does get a little overwhelming. In the acute-care settings in the hospitals you have to deal with all the sad stuff – giving people cancer diagnosis and all that stuff that comes with nursing,” Boren said. “Here at camp we don’t have that at all. These kids love to be here. It’s so laid-back and we get to really enjoy the kids and try to make their time here as enjoyable as possible.
“These kids would normally not get to do this at a regular camp.”
When she’s not in camp, Boren still makes the drive from Elk City to Norman to take her six-year-old son for therapy at JD McCarty.
Last school year, Boren was a teacher’s aide but admits most of her time is spent being the mom to three boys active in sports.
The move to Elk City was a good but so has the opportunity to bring her child to treatment at J.D. McCarty.
The J. D. McCarty Center was founded in 1946, by a veterans group called the 40 et 8 of Oklahoma. The 40 et 8 was an honor society within the American Legion. When the McCarty Center first opened its doors to patients it only treated one diagnosis – cerebral palsy.
Today, the center has treated more than 100 different diagnoses in the developmental disability category.
Kids come to Norman for treatment from all over the state of Oklahoma.
Children referred to the hospital are evaluated and treated by a team of pediatricians, pediatric specialists, registered nurses and LPNs, direct care specialists, physical, occupational, speech and language therapists, a dietitian, a clinical psychologist and psychology clinicians and social workers who focus on getting a child to their highest level of functionality and independence. “Any kid who comes through the door becomes your kid,” Boren said.

Bobby Anderson
Staff Writer

Seventy-six years ago, a group of Oklahoma City Christian women gathered in a home for a few hours of fellowship.
Little did they know that first coffee klatch would spark lifelong friendships for several generations of Christian women in Oklahoma City and change the lives of countless others.
“It’s like going to get your batteries charged,” said C.J. Judd, who has been a member for four years.
Those meetings are still going on, although the increased numbers have moved the meetings outside of members’ homes and into the Quail Creek Country Club.
And the centerpiece has become a bazaar that raises thousands of dollars for needy Oklahoma charities.
This Oct. 17 from 11a.m. to 1:30 p.m. the Christian Women of Oklahoma City will host their annual bazaar. Tickets are $20 and available only in advance by calling 405-413-0908. All proceeds go to local charities.
Tables for purchase have already been sold out for the past couple of months. Last year’s event raised nearly $3,000.
The monthly luncheons are also a source of funds for the group, which donates to four charities each year. A pass of the hat – along with the annual bazaar – raises anywhere from $1,000 to $1,500 for each of those selected charities.
Each month, speakers from all walks of life bring their experiences in front of the Christian ladies on the third Wednesday of every month. Sometimes the message is humorous, other times riddled with tragedy.
But the message is always uplifting
Ronette Wallace, owner/designer at OTW Interiors, started going to the meetings a few years ago. Running a thriving business keeps her from attending every month but she makes as many as she can.
She’s never disappointed.
“I think it’s a great organization and I have a lot of good friends that attend and they love it,” Wallace said. “I think it’s not denominational, it’s just about women loving Jesus coming together, feeding off of each other, learning about each other and having relationships.
“I believe God calls us to have relationships. We can become so stagnant in saying we can only be in this group or that group and what we really need to be doing is reaching out to everybody.
Wallace and her husband run a ministry of their own – Rise Above Ministries, a non-profit that reaches those in addiction and life controlling issues.
Wallace started OTW Interiors in 2002 and focuses her talents in clients’ homes.
She routinely donates her time and talent to the bazaar.
The meetings have always been non-denominational with the focus solely on Christ.
Judd said the group has and always will be open for women looking to pour into and be poured into themselves.
“Most people walk in alone and most people don’t do that at an event because they have to have someone with them,” Judd said. “You just feel good. You find things going on in the community. It’s picked me up off the ground several times.”
Becky Grantham found the event two years ago.
“It was just perfect for me personally,” Grantham said. “It’s a nice refreshing break towards the end of the month to be able to get around like-minded people, hear the testimonies, the education and getting to meet a lot of really wonderful ladies.
Robin Gunn’s mother talked her into coming 10 years ago.
“I went to the first one and I was hooked and now I’m on the board,” she said.
The bazaar will allow people to shop for the upcoming holiday season. Baked goods, table decorations and holiday gift ideas will be on display.
All that follows lunch, fellowship and a motivational speaker, all for $20.
“They come and they leave with just good inspiration,” Judd said. “A lot of women get friendships for years. Most of them if they come once they come again. If people just knew about it, it’s a great place to come.
“It’s an unusual place. It’s not like a club. It’s a wonderful thing. I walk away with more self worth.”
Come alone and leave with lasting friendships or at least inspiration to get you through life.
I just love the fact it’s a non-judgemental, inspirational place that you can come to fellowship without any airs,” Gunn said.

SSM Health St. Anthony Hospital – Shawnee recently recognized one of its nurses with The DAISY Award for Extraordinary Nurses. The award is part of the DAISY Foundation’s program to recognize nurses that go the extra mile for their patients, family and team members.
Tress Hindman, RN, was the recipient of The DAISY Award for her compassionate patient care, but also for her kindness and support of the staff.
In Hindman’s nomination, the staff stated, “Tress as ‘an angel with hidden wings.’” We are thankful for Tress selflessly taking time out of her busy schedule to be of service to her colleagues in their time of need. She is truly an angel indeed!”
The not-for-profit DAISY Foundation is based in Glen Ellen, CA, and was established by family members in memory of J. Patrick Barnes. Patrick died at the age of 33 in late 1999 from complications of Idiopathic Thrombocytopenic Purpura (ITP), a little known but not uncommon auto-immune disease. The care Patrick and his family received from nurses while he was ill inspired this unique means of thanking nurses for making a profound difference in the lives of their patients and patient families.
Nurses may be nominated by patients, families, and colleagues, and they are chosen by a committee of nurses at St. Anthony Hospital to receive The DAISY Award. Awards are given throughout the year at presentations given in front of the nurse’s colleagues, physicians, patients, and visitors. Each honoree receives a certificate commending her or him for being an “Extraordinary Nurse.” The certificate reads: “In deep appreciation of all you do, who you are, and the incredibly meaningful difference you make in the lives of so many people.” The honoree is also given a beautiful and meaningful sculpture called A Healer’s Touch, hand-carved by artists of the Shona Tribe in Africa.

The Oklahoma Hospital Association (OHA) board of directors has named Patti Davis president, effective Sept. 5. Davis replaces Craig W. Jones, who will retire Aug. 31 after 21 years leading OHA. Davis is only the fourth executive to lead the organization in its 99-year history.
We are excited about the selection of Patti to lead the OHA as we enter our 100th year of the association,” said David Whitaker, FACHE, OHA board chairman, chief administrative officer, Mercy-West Community. “Her experience in both small, rural hospitals and large, urban medical centers, as well as her past experience on the OHA staff will be a tremendous asset as we continue our important work strengthening hospitals across the state.”
Jimmy Leopard, FACHE, chair of the search committee and CEO, Wagoner Community Hospital, said “After an extensive nationwide search, Patti emerged as the best possible candidate to lead the organization. As both an OHA member and as OHA staff, Patti has been instrumental in a number of key OHA advocacy initiatives and we look forward to working with her as hospitals in Oklahoma face many challenges.”
“I am humbled to be selected for this position and I’m ready to get to work taking on the important role of leading the association into our next 100 years,” Davis said. “Every day, Oklahomans depend on our members’ services, and we must work to ensure the highest quality care is available to those who need it.”
Davis comes to OHA from OU Medicine, where she has served as senior vice president of external affairs, and prior to that, senior vice president of strategy and business development since 2013. She was executive vice president at the Oklahoma Hospital Association from 2001 to 2013, where she coordinated operations and special projects and led advocacy efforts on state and federal issues. She was OHA vice president, government relations from 1996 to 2001.
Before joining the OHA staff in 1996, Davis was CEO of Carnegie Tri-County Municipal Hospital. A graduate of the University of Oklahoma, Davis will complete her Master of Legal Studies in Healthcare Law degree at OU this fall.
While in Carnegie, Davis served as chairman of the OHA board of directors and received the association’s highest award, the W. Cleveland Rodgers Distinguished Service Award. She has also served on the Rural Health Association of Oklahoma board, the Medical Advisory Committee of the Oklahoma Health Care Authority, and the Trauma Advisory Council for the Oklahoma State Department of Health.
Davis is a resident of Norman, Okla.

Dear Savvy Senior, What can you tell me about clinical trials and how to go about finding one?  Old and Ill

Dear Old,
Each year, hundreds of thousands of Americans participate in clinical trials in hopes of gaining access to the latest, and possibly greatest, but not yet on the market treatments for all types of illnesses. But, you need to be aware that clinical trials can vary greatly in what they’re designed to do, so be careful to choose one that can actually benefits you. HereÕs what you should know along with some tips for locating one.
Clinical Trials
A clinical trial is the scientific term for a test or research study of a drug, device or medical procedure using people. These trials sponsored by drug companies, doctors, hospitals and the federal government are conducted to learn whether a new treatment is safe and if it works. But, keep in mind that these new treatments are also unproven, so there may be risks too.
Also be aware that all clinical trials have certain eligibility criteria (age, gender, health status, etc.) that you must meet in order to be accepted. And before taking part in a trial, you’ll be asked to sign an informed consent agreement. You can also leave a study at any time.
Find a Trial
Every year, there are more than 100,000 clinical trials conducted in the U.S. You can find them by asking your doctor who may be monitoring trials in his or her specialty. Or, you can look for them on your own at ClinicalTrials.gov. This website, sponsored by the National Institutes of Heath, contains a comprehensive database of federally and privately supported clinical studies in the U.S. and abroad on a wide range of diseases and conditions, including information about each trial’s purpose, who may participate, locations, and phone numbers for more details.
If you want some help finding the right trial, try ResearchMatch.org, a web-based resource created by Vanderbilt University that connects willing patients with researchers of clinical trial. Or, use the Center for Information and Study on Clinical Research Participation at CISCRP.org. This is a nonprofit organization that will take your information online or over the phone and do a thorough clinical trials search for you, and mail or email you the results within a week or two. Call 877-633-4376 for assistance.
Those with dementia and their caregivers can also locate clinical trials at the Alzheimer’s Association TrialMatch at TrialMatch.alz.org.
Things to Know
Before deciding to participate in a trial, you need to first discuss it with your doctor to make sure it is appropriate for you. Then, schedule an appointment with the study’s medical team and ask lots of questions, such as:
* What’s the purpose of the study and can it improve my condition?
* What are the risks?
* What kinds of tests and treatments does the study involve, and how often and where they are performed?
* Is the experimental treatment in the study being compared with a standard treatment or a placebo?
* Who’s paying for the study? Will I have any costs, and if so, will my insurance plan or Medicare cover the rest?
* What if something goes wrong during or after the trial and I need extra medical care? Who pays?
For more information on clinical trials for older adults visit the National Institute on Aging (nia.nih.gov/health/clinical-trials), which has many informative articles including one on Òquestions to ask before participating in a clinical trial.

Send your senior questions to: Savvy Senior, P.O. Box 5443, Norman, OK 73070, or visit SavvySenior.org. Jim Miller is a contributor to the NBC Today show and author of “The Savvy Senior” book.

by Bobby Anderson, Staff Writer

Twenty five years ago, Deanna Waltens fled an abusive and threatening situation.
Life had put her in such a horrible situation that the prospect of leaving with nothing in hand was better than certain misery that waited for her at home.
“I was like Forrest Gump and I kept running and running and running,” Waltens laughed, looking back on her past heartaches.
“Maybe I could have done things better. Maybe I could have thought things out. Sometimes you don’t get that chance. So if you’re in that situation you just do what you have to do.”
Along the way she found people waiting to help.
She stayed at an emergency shelter.
“I saw all the hurt and all the need through all the little children that were there with their moms,” she said. “That really started opening my eyes a lot.”
Realizing she was homeless and chronically hungry she came back to Oklahoma.
Staying with her mom in Choctaw, she put her paralegal degree to work with a local attorney.
After more than a year she realized she needed something more permanent.
An application process through the federal government landed her a job with the immigration department.
After 15 years with the immigration department she retired.
Now she spends her days helping those in need at the Salvation Army Central Oklahoma Area command food pantry.
“I came here because actually I saw something in Oklahoma’s Senior News and Living about them needing summer volunteers,” she said. “I realized what it is to be hungry, cold and scared and all the things that go with the situation.”
She stopped by and hasn’t left since.
“It’s a lovely place,” Waltens said. “The people are so great. All the other volunteers are so sweet I really love it here. I decided this was for me.”
Waltens volunteers now, largely because it was volunteers who helped her journey.
Liz Banks, volunteer director at the Salvation Army Central Oklahoma Area Command, says that’s one of the beauties of the service. Lawyers, police officers, seniors, millennials – people from all walks and professions – come together with a common goal to help their fellow human being.
It truly is an army of people coming together to help those in need.
And the need is always great. That’s why Banks loves it when she gets a call for someone inquiring how they can help.
Right now, Banks is in immediate need of spanish translators. Help is ready but sometimes communication barriers make it difficult.
If you can help in any way with time or talent call 405-246-1107.
“I went to churches and they were good and helpful but nothing like this,” Waltens said. “To me this is the ultimate in food pantries. This is just really, really good.”
Waltens knows the need is there because it was once her.
Someday it could be you.
“I think maybe they understand some but unless you’ve been there you don’t understand the real impact of getting up and wondering if you’re going to have anything to eat today,” she said. “People don’t realize, I guess they think it’s third world countries that face it but you face it here.”
She likes the fact people can come and get short-term help while others can utilize services longer term.
“Makes me feel really good,” Waltens smiled. “I realize that the Salvation Army is just that, it’s salvation for a lot of people – not only temporarily but spiritually, too. So much good goes on here. I see the Red Shield Diner help people every day.”
“I know the shelter. I know it’s a great place to be. It’s just a helping situation.”
Waltens comes from a generation that takes great pride on self reliance. Hard times are just opportunities to pull up your bootstraps.
But sometimes life leaves you shoeless.
“Don’t worry about coming here if you need help because anyone of us is 24 hours away from something like that. Not only does it give them that experience and help but it gives us the opportunity to serve.”
“Everytime I help someone through there I think I’m getting a blessing.
“I get more out of it.”