Leah Campbell remembers the day she lost her vision. She was a sixth grader, in her bedroom one morning in Altus, when she heard her mother walk in.
“Will you please turn on the lights?” Leah, then 11, asked.
“They are on,” said her mother.
It would take 17 years before Leah and her family would learn what had caused her blindness.
In that time, the little-known disease that took her eyesight would also rob her of her mobility, leaving her confined to a wheelchair.
Neuromyelitis optica, or NMO, occurs when the body’s immune system attacks the spinal cord, optic nerves and, in severe cases, the brain. The illness affects about 4,000 Americans, 80 percent of whom are women. Over time, patients typically develop blindness, muscle weakness and paralysis.
“NMO was initially considered a subset of multiple sclerosis and is so similar to MS that it often gets misdiagnosed,” said Bob Axtell, Ph.D., a scientist at the Oklahoma Medical Research Foundation who holds a pair of grants from the National Institutes of Health to study the rare disease. “This can be devastating for patients.”
That was the case for Leah. For years, doctors treated her with a common MS medication called interferon beta-1a, or Rebif. But not only does this medication fail to help NMO patients; it actually worsens their conditions.
It wasn’t until 2006, years after Leah had become the first blind graduate of Rhodes College in Tennessee, that scientists developed a definitive test for NMO. The test revealed that she suffered from the disease, and her physician, Gabriel Pardo, M.D., immediately took her off the drug. Instead, he began treating her with rituximab, an immune-suppressing monoclonal antibody known to control NMO disease activity.
While rituximab is not a cure for the underlying condition, in the 13-plus years Leah has been taking the medication, she’s been free of the sudden, violent attacks that had plagued her life until that point.
“Her right side was fine, but on the left, she would sort of vibrate,” said Leah’s mother, Theresa. “Her foot would turn in, her leg would draw up tight, and her hand would clench. Her whole ribcage would spasm uncontrollably.”
Before rituximab, Leah would sometimes experience 40 to 50 of these episodes a day. Since going on the drug, said Pardo, “her disease activity has been fully controlled.”
Still, the disease had already run wild in Leah’s body for the better part of two decades. “She has deficits that date to before she was a teenager,” said Pardo, a neuro-ophthalmologist who treats Leah at OMRF’s Multiple Sclerosis Center of Excellence, where he serves as director. “The blindness, the paralysis – unfortunately, those are things we can’t reverse.”
Today, at the age of 41, Leah is confined to a wheelchair and lives with her parents in Mustang. She requires regular care at OMRF, as she is at constant risk for fractures, skin ulcers, and bladder and bowel dysfunction.
Still, each week, with her parents’ help, Leah also attends aquatic and equine therapy sessions and a Bible study class. This past summer, she started a new job with a company that provides voice-activated smart controls for operating lights, locks, thermostats and other home systems.
She’s particularly excited about her new service dog, a chocolate lab named Seaclaid (Gaelic for chocolate) her parents are training to help her become more independent.
Despite the hurdles she faces, Leah remains optimistic about her future. “I’m just a positive thinker. My cup’s always half-full,” she said.
For OMRF researcher Axtell, patients like Leah drive his search for answers. “The more we understand about NMO,” he said, “the better the outlook will be for people struggling with this horrible condition.”

The Oklahoma Medical Research Foundation honored Congressman Tom Cole (R-OK) recently with its inaugural Multiple Sclerosis Advocate Award.
Cole received the award for his role in championing biomedical research on MS and other diseases. The ceremony took place at the Oklahoma City Golf and Country Club, during a dinner that also raised more than $270,000 for research and patient care at OMRF’s Multiple Sclerosis Center of Excellence.
During his nine terms in the U.S. House of Representatives, Cole has advocated for biomedical research on the national level. Cole is the former Chairman and current Ranking Member of the House Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies. Under his leadership, the National Institutes of Health’s budget has grown almost $8 billion since 2014.
“Congressman Cole has used his considerable influence to benefit those suffering from disease,” said Chickasaw Nation Governor Bill Anoatubby, who serves on OMRF’s board and presented the award to Cole. “Multiple sclerosis is one of many diseases that impacts the lives of Oklahomans, and Tom understands their struggle. It fuels his passion for funding research that ultimately will make a difference for countless Americans.”
MS causes vision problems, tremors, paralysis, painful spasms, imbalance and cognitive changes. At OMRF, more than 3,000 MS patients receive treatment from clinicians, who also team with laboratory researchers in an effort to develop new treatment options.
“Everyone has family members and loved ones who are affected by some form of disease,” said Cole. “Regardless of your politics, funding for biomedical and disease research is always a worthy cause. As I serve in Congress, I will continue fighting to sustain and increase the gains that we have made, so centers of research excellence like OMRF can continue to pursue groundbreaking research to find more cures and treatments that benefit all of society.”
Those efforts, said OMRF President Stephen Prescott, M.D., have indeed made a difference.
“Congressman Cole prioritized research funding and has been responsible for historic increases,” said Prescott. “Because of his leadership, we’re now seeing new and meaningful discoveries that will change—and save—lives.”
The Chickasaw Nation served as the lead sponsor of the event, which also received support from Nancy Ellis, Lou and Jim Morris, Susan and Louis Dakil, the Clyde Evans Trust, and the Scaramucci Foundation.

https://www.caresuitesokc.com/

EMSA and INTEGRIS Health have partnered to develop a one-of-a-kind specialty care transport ambulance. On Monday, this unit, designated “ECMO 1”, will join the EMSA system.
INTEGRIS Health is proud to be the home of a world class ECMO program that offers lifesaving therapies to patients facing imminent death. INTEGRIS is the first in the state to establish a specialized life support program solely devoted to adult patients suffering from heart or lung failure. The program uses extracorporeal membrane oxygenation, commonly abbreviated as ECMO, as an advanced lifesaving therapy. Since inception of the INTEGRIS ECMO program in 2014, the INTEGRIS team has served over 500 patients with this technology. INTEGRIS’ ECMO team is made up of talented doctors, nurses, perfusionists, and respiratory therapists, who are expertly trained in the field of ECMO and advanced critical care. The INTEGRIS ECMO team is available to serve those in need 24 hours a day, 7 days a week, 365 days a year.
ECMO provides support to patients whose heart and/or lungs are so severely diseased or damaged that they can no longer serve their function; perhaps after a heart attack, cardiac surgery, pulmonary embolism, near drowning or lung-related issues such as flu or pneumonia. The goal is to allow the heart or lungs to rest and recover while the machine does all the work. When the heart or the lungs have healed and can work on their own, the lifesaving support of the ECMO artificial heart/lung machine is weaned then removed.
INTEGRIS Critical Care ECMO team in conjunction with EMSA provides the highest level of complex care in the state. Outside of ECMO transfers, the INTEGRIS and EMSA teams have the capability of transporting patients who require advanced management of ventilator support, IV medications, and cardiac assist devices including intraaortic balloons pumps, impella devices, and LVAD pumps. The expertise of this team allows for safe inter-hospital transfers, so patients can receive the one of a kind care only INTEGRIS can provide.
Previously only done in a hospital setting, technological advances have allowed ECMO to move into ambulances. Together with EMSA, the INTEGRIS ECMO team stands ready to be there anytime, anywhere, for anyone in need of this life-saving care.
EMSA’s ECMO unit specifications were designed in collaboration with the INTEGRIS Health ECMO Team. Special attention was paid to the layout of the ambulance to make sure the patient could receive the critical clinical care needed, could comfortably and safely transport up to five ECMO Team Members in addition to the patient during long distance transports. Additionally, the larger ambulance also has the capacity to carry more oxygen and other medical gasses that are needed for ECMO patients.
When not assigned to ECMO transports, this unit will serve as one of EMSA’s bariatric ambulances for the Oklahoma City area ensuring this unit is able to serve several key roles in the EMSA system.

The Inspector General for the Social Security Administration, Gail S. Ennis, is designating Thursday, March 5, 2020 as National “Slam the Scam” Day, to raise public awareness of government imposter telephone scams across the United States.
These pervasive scams—in which callers pretend to be government employees to mislead victims into providing personal information or making payments—have become a scourge on the American public. The Federal Trade Commission recently reported victims lost nearly $153 million to government imposter scams in just fiscal year 2019. Social Security-related scams in particular have skyrocketed over the past year to become the #1 type of consumer fraud reported to the Federal Trade Commission and the Social Security Administration.
To combat these scams, the Social Security Administration and its OIG have undertaken a public outreach campaign to educate the public so they will know how to identify these scam calls. We want the public to know SSA will never:
* Tell you that your Social Security number has been suspended, or offer to increase your benefits or resolve an identity theft issue for a fee.
* Call to threaten you with arrest or legal action if you do not immediately pay a debt, fine, or fee.
* Request immediate payment via gift cards, cash, wire transfers, or internet currency like Bitcoin.
* Demand secrecy from you in handling a Social Security-related problem, or tell you to make up a story to tell your friends, family, or store/bank employees.
Social Security Office of the Inspector General (OIG) is engaging other Federal agencies and the private sector to promote a National “Slam the Scam Day” as a National Consumer Protection Week initiative. On March 5, we plan to participate in a USA.gov-hosted Twitter chat, and a Facebook Live event at Social Security. We want to warnallAmericans to hang up on all government imposters, and ask them to spread the word to family and friends.
“Awareness is our best hope to thwart the scammers,” said Inspector General Ennis. “Tell your friends and family about these scams and report them to us when you receive them, but most importantly, just hang up and ignore the calls.”
We encourage the public to report Social Security scams online at https://oig.ssa.gov. IRS imposter scams can be reported to the Treasury Inspector General for Tax Administration, and other government imposter scams to the Federal Trade Commission.
Look for us on Facebook and Twitter for updates about National “Slam the Scam” Day events. For questions or interview requests, email oig.dcom@ssa.gov or call (410) 965-2671.
Please visit https://oig.ssa.gov/scam for more information

Project funded by nearly $5 million in donations

SSM Health St. Anthony Hospital recently announced the opening of a newly expanded area designed to enhance exceptional care for cancer patients. The opening of the newest addition to the Frank C. Love Cancer Institute was commemorated in a blessing ceremony on Friday, February 14.
The expansion of the Institute was necessary to respond to the growing number of patients needing cancer care at St. Anthony Hospital. With the opening of the new clinical space, the Institute more than doubles its size to nearly 16,000 square feet. The cancer program moved from its former location on the ground floor to a spacious third floor space with natural lighting and many amenities conducive to healing and comfort.
“We are pleased to expand the Frank C. Love Cancer Institute to enhance the exceptional care and comfort for our patients and their families,” stated Tammy Powell, President, SSM Health St. Anthony Hospital. “The project was made possible by generous donations to the SSM Health St. Anthony Foundation from The Chickasaw Nation, the J.E. & L.E. Mabee Foundation, the Tom and Judy Love Family, physicians, employees, board members, volunteers, patients, individuals, businesses and Foundations.”
Foundation Board members Mike Milligan and Jamie Farha, along with Dr. Thy Nguyen, Section Chair of Oncology, led the philanthropy efforts to fund the expansion. The Institute’s team of medical oncologists Dr. Michael Bowen, Dr. Thy Nguyen, Dr. David Lam and Dr. Todd Kliewer were actively involved in all aspects of the design of the expanded space, being mindful of the overall experience of both patients and staff. The physician offices will be adjacent to a chemotherapy infusion area for patient comfort and convenience.
The space features updated finishes that extend beyond the clinical space into the four-story atrium. REES Architecture & Design served as the architecture firm for the project, and Waldrop Construction was the general contractor. The atrium acts as a physical connection between the various floors that make up the Institute. A refreshing palette of bright whites and creams is contrasted by rich navy blue. Crisp wood tones and dramatic lighting are evident throughout the space. Beyond the aesthetics, the space was carefully planned to focus on the needs of patients and their families seeking treatment, as well as the staff dedicated to their care.
For more information about the Frank C. Love Cancer Institute or for a physician referral, call 405-231-8866.

story and photo by Bobby Anderson, Staff Writer

When Pearline Childress’ family circle in her lifelong hometown of Coweta started growing smaller and smaller, she knew she needed to make a change.
Her son, Dave, knew it was a decision she couldn’t make alone.
“I would see mom on average once a month and my sister would see her maybe once a week,” said Dave, an Edmond native who travels extensively for business. “Since her sister passed away her social interaction just wasn’t very much.”
Both children poured over brochures and facilities and options.
During the process, Tealridge Retirement Coordinator Kristen Moss urged the entire Childress family to come up for lunch one Saturday.
“It helps when they can come enjoy the community for a couple events before they move in,” Moss said. “We spent pretty much all afternoon on that Saturday sitting and talking with residents. I think we try to incorporate more of the activity of living here before they even move to give them a glimpse and give them that trial.”
The afternoon was one to remember.
“The staff, I just fell in love with these guys from the jump,” he said. “But it’s the residents that really make it.”
The decision to move to Tealridge meant Pearline Childress would leave behind 72 years of life in Coweta – a place where she had taught school and raised her children.
Moving would mean separation from all she had known.
But little did she know, moving would also prepare her heart for more people to move in.
“Everybody is just so nice and friendly,” Pearline said. “It’s really impressed me.”
Now just eight miles down the road, Dave Childress comes up most mornings to have coffee with his mom.
During the process, Childress told his wife that his biggest wish was to show up one day and his mother would be sitting out front surrounded by friends.
“I thought if we could ever get there that would make my heart happy,” he said. “I think it was middle of last week I popped up here and I walked in and she was out there with the ladies.”
“It made me feel really good.”
Elaine Rowton knows that feeling well.
Rowton spent 35 years as office manager for an Edmond pediatric dentist before moving to Tealridge.
She lived on the other side of Oklahoma Christian for 40 years before her and her late husband finalized plans for their next move. He passed last year but Rowton never wavered on her decision to come to Tealridge.
“Everything just clicked, clicked, clicked like it was a God thing,” said Rowton, who has lived at Tealridge for three months after following her neighbor of 25 years to the residence. “We looked at other facilities but this was my choice. I like that I have lots of neat friends.”
Daily housekeeping, laundry and trash service, three meals a day and welcoming staff all come together to make Rowton feel at home.
“I feel secure here. The place has a really special, comforting atmosphere to it,” she said.
Macular degeneration started working on Ruby White’s eyesight a few years ago. Her sister convinced her to move to Washington to come live with her but she didn’t feel right once she got there so she moved back to Oklahoma.
The 45-year nurse used an online search company and her telephone to find a home.
“I think I drove these people totally crazy,” she said. “I talked to every one of them because I didn’t know really what to expect. I chose this because they were so helpful. They helped me decide I could be OK here. I wasn’t sure of that.”
And in a short period of time at Tealridge, all three ladies know everything is going to be just fine. Visit: https://www.seniorliving-edmond.com/?gclid=EAIaIQobChMIt-r01IeB6AIVjIbACh2dRgmrEAAYASAAEgIIS_D_BwE

I love gardening and flowers. My front flower bed at my house I thought was pretty nice. Elaine Rowton

The biggest thing I like is the appearance of life and I love seeing everything growing and blooming. Ruby White

It’s silly but spring is my favorite time of year because I do wild turkey hunting. Dave Childress

The beautiful weather with all the flowers and trees turning green and children out playing and enjoying themselves. Pearline Childress

Decades Old Rule Updated to Reflect Today’s Workforce

Social Security Commissioner Andrew Saul announced a new final rule today, modernizing an agency disability rule that was introduced in 1978 and has remained unchanged. The new regulation, “Removing the Inability to Communicate in English as an Education Category,” updates a disability rule that was more than 40 years old and did not reflect work in the modern economy. This final rule has been in the works for a number of years and updates an antiquated policy that makes the inability to communicate in English a factor in awarding disability benefits.
“It is important that we have an up-to-date disability program,” Commissioner Saul said. “The workforce and work opportunities have changed and outdated regulations need to be revised to reflect today’s world.”
A successful disability system must evolve and support the right decision as early in the process as possible. Social Security’s disability rules must continue to reflect current medicine and the evolution of work.
Social Security is required to consider education to determine if someone’s medical condition prevents work, but research shows the inability to communicate in English is no longer a good measure of educational attainment or the ability to engage in work. This rule is another important step in the agency’s efforts to modernize its disability programs.
In 2015, Social Security’s Inspector General recommended that the agency evaluate the appropriateness of this policy. Social Security owes it to the American public to ensure that its disability programs continue to reflect the realities of the modern workplace. This rule also supports the Administration’s longstanding focus of recognizing that individuals with disabilities can remain in the workforce.
The rule will be effective on April 27, 2020.